Priapism in Boys and Men With Sickle Cell Disease - Demographics, Characteristics and Prevalence

Summary

Priapism, a prolonged erection of the penis, is a medical issue that often affects men with sickle cell disease. The purpose of this study is to collect demographic and clinical information on priapism by interviewing men with sickle cell disease.

Conditions

• Priapism
• Anemia, Sickle Cell

Sponsors & Collaborators

• National Heart, Lung, and Blood Institute (NHLBI)

  collaborator NIH

• University of Texas Southwestern Medical Center

  lead OTHER

Principal Investigators

• Samir Ballas, MD · Thomas Jefferson University

• Lennette Benjamin · Montefiore Medical Center and Children's Hospital of Montefiore

• J. Bessman, MD · University of Texas Southwestern at Galveston

• Joan Cain, MD · UT Children's Hospital of Oklahoma

• Lewis Hsu, MD · St. Christopher's Hospital

• Laura DeCastro, MD · Duke University

• Cage Johnson, MD · University of Southern California Los Angeles County & University of Southern California Medical Center

• Karen Kalinyak, MD · Children's Hospital Medical Center, Cincinnati

• Susan Lieff, PhD · Rho, Inc.

• Lillian McMahon, MD · Boston Medical Center

• William Mentzer, MD · University of California San Francisco Pediatric Hematology/Oncology

• Ashok Raj, MD · Norton Healthcare

• Rupa Redding-Lallinger, MD · University of North Carolina, Chapel Hill

• Zora R. Rogers, MD · University of Texas Southwestern Medical Center at Dallas and Children's Medical Center

• Cynthia Rutherford, MD · University of Texas, Southwestern Medical Center at Dallas

• Kim Smith-Whitley, MD · Children's Hospital of Philadelphia

• Elliott Vichinsky, MD · Children's Hospital and Research Center at Oakland & Summit Medical Center

• Winfred Wang, MD · St. Jude Children's Research Hospital

• Richard Snyder, MD · University of Cincinnati

• Kathryn Hassell, MD · University of Colorado, Denver

• Matthew Heeney, MD · Boston Children's Hospital

• Eric Kraut, MD · Ohio State University

• Stacy Month, MD · Kaiser Permanente - Oakland

• Maureen Okam, MD · Dana-Farber Cancer Institute

• Courtney Thornburg, MD · Duke University

Eligibility

Min Age

5 Years

Sex

MALE

Healthy Volunteers

No

Timeline & Regulatory

Start

2005-08-31

Primary Completion

2008-03-31

Completion

2008-03-31

Countries

• United States

Study Locations