Hypertrophic Myopathy in Children
NCT00267462 · Status: TERMINATED · Type: OBSERVATIONAL · Enrollment: 75
Last updated 2007-05-07
Summary
The purpose of this study is to identify the patients seen in our practice who are seen with Hypertrophic Myopathy diagnosis in order to better understand the presenting characteristics of their disease, the diagnostic testing to determine the diagnosis, the methods used to follow the disease progression and management practices used in caring for these patients. The objectives of this data review will be an analysis to determine if there is a methodology that will foster improved diagnostic speed and accuracy, and determine the best management practices based on outcomes in these patients.
Conditions
- Congenital Disorders
Sponsors & Collaborators
-
Children's Healthcare of Atlanta
lead OTHER
Principal Investigators
-
Kenneth J. Dooley, MD · Sibley Heart Center Cardiology at Children's Healthcare of Atlanta
Eligibility
- Max Age
- 21 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 1996-01-31
Countries
- United States
Study Locations
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