Diamond Blackfan Anemia Registry (DBAR)
NCT00106015 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 900
Last updated 2026-04-16
Summary
The purpose of this study is to maintain a comprehensive registry of patients with the rare inherited bone marrow failure syndrome Diamond Blackfan anemia (DBA).
Conditions
- Anemia
- Blood Disease
Sponsors & Collaborators
-
Northwell Health
lead OTHER
Principal Investigators
-
Adrianna Vlachos, MD · Cohen Children's Medical Center of NY/Feinstein Institutute for Medical Research
-
Jeffrey M Lipton, MD, PhD · Cohen Children's Medical Center of NY/Feinstein Institute for Medical Research
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2004-09-30
- Primary Completion
- 2030-04-30
- Completion
- 2030-04-30
Countries
- United States
Study Locations
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