MedTrace Logo

Pilot Study of the Process of Prenatal Genetic Counseling

NCT00047905 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 30

Last updated 2008-03-04

No results posted yet for this study

Summary

This study will examine the process of prenatal genetic counseling to determine how various client and counselor factors affect the communication process in a counseling session. The specific aims of the study are to:

* Provide information on prenatal genetic counselors' interactions with clients for the basis of a future larger study of the genetic counseling process.
* Determine the average length and the range of length of prenatal genetic counselors' interactions with clients when family history information has already been provided.
* Document on videotape the communication content and interaction dynamics of prenatal genetic counselors interacting with clients in order to:
* Characterize different models of prenatal genetic counseling
* Determine the nature of discussions concerning cystic fibrosis carrier testing within the context of prenatal genetic counseling.
* Examine the impact of prenatal genetic counselors' characteristics (years of experience, training and background, age, clinical setting, anxiety) on the communication content and interaction dynamics of sessions with clients.
* Examine the impact of the presence of a spouse on the communication content and interaction dynamics of prenatal genetic counseling sessions with clients.
* Examine the impact of client verbal emotional cues on the communication content and interaction dynamics of prenatal genetic counseling sessions.

Counselors will be recruited for this study from among practicing prenatal genetic counselors at regional meetings and a national meeting of the National Society of Genetic Counselors. They will perform prenatal genetic counseling sessions with actors in the roles of client and client's spouse. The sessions will be videotaped, and the counselor and actors will fill out questionnaires regarding the characteristics of the counselor and the session.

Counselors may be contacted later to request permission to use segments of their videotaped sessions for creating a video teaching tool for counseling professionals that illustrates different ways to practice the genetic counseling.

Conditions

  • Genetic Counseling

Interventions

BEHAVIORAL

examine the process of prenatal genetic counseling

Sponsors & Collaborators

  • National Human Genome Research Institute (NHGRI)

    lead NIH

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2002-10-31
Completion
2003-04-30

Countries

  • United States

Study Locations

More Related Trials

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT00047905 on ClinicalTrials.gov