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Adult Bladder and Quality of Life Evaluation in Spina Bifida

NCT07642466 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 300

Last updated 2026-06-12

No results posted yet for this study

Summary

Spina bifida (SB) is a birth defect that affects the spine, often causing paralysis in the legs and problems with bladder and bowel control. Managing these bladder issues is important, but different methods, like using a catheter or surgery, can impact a person's quality of life. This study looks at how different bladder management methods affect the quality of life for young people with SB. Researchers will ask people with SB to complete a survey about how they manage their bladder and how it impacts their daily lives. The main goal is to find out if certain bladder management methods are associated with a better quality of life. This information could help doctors make better treatment decisions and counsel young people living with SB.

Conditions

  • Spina Bifida or Spinal Dysraphism

Sponsors & Collaborators

  • London Health Sciences Centre Research Institute OR Lawson Research Institute of St. Joseph's

    collaborator OTHER

  • Blayne Welk

    lead OTHER

Principal Investigators

  • Blayne Welk, MD MSc · Western University

Eligibility

Min Age
13 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2025-01-01
Primary Completion
2026-10-31
Completion
2026-11-01

Countries

  • Canada

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT07642466 on ClinicalTrials.gov