Utilisation of Health Services and Quality of Life in Patients With Atypical Parkinsonian Syndromes
NCT06645626 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 198
Last updated 2024-10-17
Summary
The study will compare health care utilisation and quality of life for patients with progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy in different parts of the region that our specialist clinic operates in with different services as well as in other regions with no specialist clinics. This study aims to investigate which aspects of the service are most beneficial for the patients and to determine the influence of support services and specialty clinics on patients and their carers.
Conditions
- Progressive Supranuclear Palsy
- Cortico Basal Degeneration
- Multiple System Atrophy
Sponsors & Collaborators
-
University Hospital Southampton NHS Foundation Trust
lead OTHER
Principal Investigators
-
Boyd CP Ghosh, MBBS · Wessex Neurological Centre
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2022-10-10
- Primary Completion
- 2026-08-31
- Completion
- 2027-07-15
Countries
- United Kingdom
Study Locations
More Related Trials
-
Biomarkers in Parkinsonian Syndromes
NCT06501469 ·Status: RECRUITING
-
Clinical Investigation of NMS Assist
NCT05414071 ·Status: WITHDRAWN ·Phase: NA
-
Temporal Relationship Between Motor Fluctuations and Nonmotor Fluctuations
NCT02060695 ·Status: RECRUITING
-
Biomarkers in Parkinsonian Syndromes
NCT02114242 ·Status: RECRUITING
-
Risk Factors for Progressive Supranuclear Palsy (PSP)
NCT00431301 ·Status: COMPLETED
-
The Quality of Life in Individuals With Parkinson's Disease
NCT05906693 ·Status: COMPLETED
-
Parkinson's Disease and Experiences Throughout the COVID-19 Pandemic
NCT04720118 ·Status: UNKNOWN
-
Lifestyle and Non-motor Symptom Management in Parkinson's Disease
NCT04837976 ·Status: TERMINATED
-
Parkinson's Repository of Biosamples and Network Datasets (Tracking Parkinson's)
NCT02881099 ·Status: COMPLETED
-
Care for Late Stage Parkinsonism
NCT02333175 ·Status: COMPLETED ·Phase: NA
-
NMR Based Metabolomic Study of Serum Biomarkers in Patients With Parkinson's Disease and Atypical Parkinsonian Syndrome
NCT06490926 ·Status: RECRUITING
-
Training of Nursing Home Professionals and Quality of Life of Residents With Parkinson's Disease
NCT06908460 ·Status: RECRUITING
-
Online Dance Versus Therapeutic Exercise for Parkinson Disease.
NCT05910216 ·Status: COMPLETED ·Phase: NA
-
SELF-CARE IN PARKINSON'S DISEASE: A STUDY ON PATIENTS AND CAREGIVERS/Self-care in the Patient-caregiver Dyad With Parkinson's Disease: A Descriptive Observational Study
NCT06953050 ·Status: NOT_YET_RECRUITING
-
Pre-Gene Therapy Study in Parkinson's Disease and Multiple System Atrophy
NCT05699460 ·Status: ACTIVE_NOT_RECRUITING
-
Aquaporin-4 Single Nucleotide Polymorphisms in Patients With Idiopathic and Familial Parkinson's Disease
NCT04553185 ·Status: COMPLETED
-
The Effectiveness of Motor-motor and Motor-cognitive Dual-task Training Interventions on Balance in People With Parkinson's Disease: a Feasibility Study
NCT05710588 ·Status: UNKNOWN ·Phase: NA
-
Empathy and (Self-)Compassion in Parkinson's Disease Patients and Caregivers
NCT07097298 ·Status: RECRUITING ·Phase: NA
-
More Than a Movement Disorder: Applying Palliative Care to Parkinson's Disease
NCT03076671 ·Status: COMPLETED ·Phase: NA
-
Social & QoL Behaviors in Parkinson's Disease
NCT06385184 ·Status: RECRUITING
-
Treatment Burden in Parkinson's
NCT04769973 ·Status: COMPLETED
-
Help-seeking for Health Problems in People With Parkinson's
NCT03275649 ·Status: COMPLETED
-
Multidisciplinary Health Educational Program Based on Centered People Care Model in Parkinson's Disease
NCT04783129 ·Status: UNKNOWN ·Phase: NA
-
Psychological Ressources, Anxiodepressive Symptoms, Well-being and Therapeutical Observance in Parkinson's Disease
NCT05919628 ·Status: COMPLETED
-
Sporadic Degenerative Ataxia With Adult Onset: Natural History Study
NCT02701036 ·Status: RECRUITING