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What Does the Patient Experience Represent for Patients and Caregivers in Dialysis?

NCT06529887 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 160

Last updated 2024-07-31

No results posted yet for this study

Summary

The primary objective of this work is to describe the vision, representations, and beliefs of professionals and patients regarding the role and place of the user during their care journey at the Calydial renal health facility.

Methodology: a mixed qualitative and quantitative research.

* Qualitative research: semi-structured interviews with patients and caregivers. The objective is to define the meaning of the patient experience from the perspectives of patients and caregivers.
* Single-center prospective quantitative study: design of two questionnaires (one for patients and one for caregivers). The objectives of the questionnaires are to:

* Evaluate the feelings, experiences, and representations/beliefs of the patient experience by caregivers and patients.
* Assess the understanding of the patient experience by caregivers and patients.
* Compare the patient experience based on the following parameters: age of patients, gender, treatment duration, treatment location, treatment modality, patient autonomy.
* Measure the gap between patient and caregiver perspectives to identify/adjust actions.

Conditions

  • Experience, Life
  • Dialysis
  • Patient Engagement
  • Patient Participation
  • Patient Relations, Nurse
  • Patient Satisfaction

Sponsors & Collaborators

  • OZ'IRIS Santé

    collaborator UNKNOWN

  • Calydial

    lead OTHER

Principal Investigators

  • Agnès CAILLETTE-BEAUDOIN, Dr · Calydial

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2022-02-07
Primary Completion
2022-03-10
Completion
2022-03-10

Countries

  • France

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06529887 on ClinicalTrials.gov