Experiences and Health-related Quality of Life of Informal Caregivers of Dialysis Patients

Summary

The goal of this prospective, observational, multicentre cohort study is to assess the trajectory of the experiences (both positive and negative) and health-related quality of life (HRQOL) of informal caregivers of patients who start home dialysis, and compare these to experiences and HRQOL of informal caregivers of patients who start in-centre hemodialysis. The investigators hypothesise that informal caregivers of home dialysis patients experience more positive experiences, but also more negative experiences, and still have better HRQoL, compared with caregivers of in-centre HD patients. Participants will fill in five different validated questionnaires and questions on required support. Participants are asked to fill in the questionnaires after inclusion (i.e., start of dialysis), and at 6 and 12 months after start dialysis.

Conditions

• Peritoneal Dialysis
• Hemodialysis, Home
• Hemodialysis
• Quality of Life
• Informal Caregivers
• Family Caregivers
• Renal Replacement Therapy
• Kidney Failure, Chronic
• Patient Reported Outcome Measures

Sponsors & Collaborators

• Admiraal de Ruyter Hospital

  collaborator OTHER

• Alrijne Hospital

  collaborator OTHER

• Amphia Hospital

  collaborator OTHER

• St. Antonius Hospital

  collaborator OTHER

• Canisius-Wilhelmina Hospital

  collaborator OTHER

• Catharina Ziekenhuis Eindhoven

  collaborator OTHER

• Deventer Ziekenhuis

  collaborator OTHER

• Dialysis Center Beverwijk

  collaborator UNKNOWN

• Tergooi Hospital

  collaborator OTHER

• Diapriva Dialysis Center, Amsterdam

  collaborator OTHER

• Elkerliek Hospital

  collaborator OTHER

• Flevoziekenhuis

  collaborator OTHER

• Gelre Hospitals

  collaborator OTHER

• Groene Hart Ziekenhuis

  collaborator OTHER

• Haga Hospital

  collaborator OTHER

• Isala

  collaborator OTHER

• Laurentius Hospital

  collaborator UNKNOWN

• Maasstad Hospital

  collaborator OTHER

• Maxima Medical Center

  collaborator OTHER

• Noordwest Ziekenhuisgroep

  collaborator OTHER

• OLVG Oost

  collaborator UNKNOWN

• OLVG West

  collaborator UNKNOWN

• Radboud University Medical Center

  collaborator OTHER

• Reinier de Graaf Groep

  collaborator OTHER

• Rijnstate Hospital

  collaborator OTHER

• Saxenburgh Group

  collaborator UNKNOWN

• Slingeland Hospital

  collaborator OTHER

• UMC Utrecht

  collaborator OTHER

• VieCuri Medical Centre

  collaborator OTHER

• Amsterdam UMC

  collaborator OTHER

• Bernhoven Hospital

  collaborator OTHER

• ZorgSaam

  collaborator UNKNOWN

• Jessa Hospital

  collaborator OTHER

• B.C. van Jaarsveld

  lead OTHER

Principal Investigators

• Brigit C van Jaarsveld, MD, PhD · Amsterdam UMC, location VUmc

Eligibility

Min Age

18 Years

Sex

ALL

Healthy Volunteers

Yes

Timeline & Regulatory

Start

2018-01-01

Primary Completion

2023-12-31

Completion

2023-12-31

Countries

• Belgium
• Netherlands

Study Locations