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Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)

NCT06234384 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 6833

Last updated 2025-09-19

No results posted yet for this study

Summary

The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.

Conditions

  • Sarcoidosis

Interventions

OTHER

Sarcoidosis diagnosis

Participants have been diagnosed with sarcoidosis.

Sponsors & Collaborators

  • Foundation for Sarcoidosis Research

    lead OTHER

Eligibility

Min Age
7 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2013-07-31
Primary Completion
2033-06-30
Completion
2033-07-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06234384 on ClinicalTrials.gov