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Exploring Patient Reported Outcomes in Inherited Ichthyosis

NCT06123091 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 20

Last updated 2023-11-08

No results posted yet for this study

Summary

The goal of this observational study is to learn about the presence of extracutaneous manifestations in patients with congenital ichthyosis.

The main question it aims to answer is:

\- Do patients with congenital ichthyosis experience extracutaneous manifestations?

Participants will fill in questionnaires in which the investigators will explore whether patients experience extracutaneous manifestations, and if so what these manifestations entail. Examples of such questions are whether patients experience (joint) pain or whether they experience hindrance due to their complaints.

Conditions

  • Congenital Ichthyosis

Interventions

OTHER

Questionnaires with patient reported outcome measures

Questionnaires to gain insight of the prevalence of extracutaneous manifestations and the impact of the disease on the quality of life.

Sponsors & Collaborators

  • Maastricht University Medical Center

    lead OTHER

Principal Investigators

  • Antoni C Gostynski, MD, PhD · Maastricht UMC+

Eligibility

Min Age
16 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2023-09-01
Primary Completion
2024-10-01
Completion
2024-12-01

Countries

  • Netherlands

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06123091 on ClinicalTrials.gov