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Quality of Life and Disease-related Symptoms in Individuals With Systemic Mastocytosis

NCT06065007 · Status: ACTIVE_NOT_RECRUITING · Type: OBSERVATIONAL · Enrollment: 400

Last updated 2025-04-04

No results posted yet for this study

Summary

Systemic Mastocytosis is a rare and complex disease caused by accumulation of mast cells. The skin, bones, gastrointestinal tract, bone marrow and liver are the organs most often affected. Symptoms can vary greatly between patients. The study aims to describe the Swedish cohort's self-rated quality of life and levels of disease-related symptoms.

Conditions

  • Mastocytosis, Systemic

Interventions

OTHER

No intervention

This is a cross-sectional observational study, no intervention will be implemented or exposure studied. Data for outcomes of interest will be collected via questionnaires

Sponsors & Collaborators

Principal Investigators

  • Mariann Hedström, PhD · Uppsala University, Department of Public Health and Caring Sciences

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2024-03-25
Primary Completion
2024-09-30
Completion
2028-11-15

Countries

  • Sweden

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT06065007 on ClinicalTrials.gov