Data Collection Protocol for Patients With Von Hippel Lindau Disease
NCT05955014 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 125
Last updated 2025-11-20
Summary
To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
Conditions
- Von Hippel Lindau Disease
Sponsors & Collaborators
-
M.D. Anderson Cancer Center
lead OTHER
Principal Investigators
-
Eric Jonasch, MD · [email protected]
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2023-08-24
- Primary Completion
- 2026-12-31
- Completion
- 2026-12-31
Countries
- United States
Study Locations
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