Chronic Thromboembolic Disease Registry
NCT05843500 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 100
Last updated 2025-06-12
Summary
The goal of this patient registry is to learn about the natural history in patients with chronic thromboembolic disease (CTD) and/or chronic thromboembolic pulmonary hypertension (CTEPH). The main question\[s\] it aims to answer are:
* Long-term outcome after various types of treatment, including medication, balloon pulmonary angioplasty, and pulmonary endarterectomy
* Effect of treatment on patient's quality of life and exercise tolerance Participants will be followed longitudinally to assess their health outcomes and quality of life via chart review and health quality surveys.
Conditions
- Chronic Thromboembolic Pulmonary Hypertension
- Chronic Thromboembolic Disease
Interventions
- OTHER
-
Survey
Patients who received medical, surgical or interventional treatment for chronic thromboembolic pulmonary hypertension will be followed and given quality of life questionnaires.
Sponsors & Collaborators
-
University of California, San Francisco
lead OTHER
Principal Investigators
-
Miles Conrad, MD · University of California, San Francisco
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2023-08-01
- Primary Completion
- 2028-07-01
- Completion
- 2028-07-01
Countries
- United States
Study Locations
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