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Benchmarking Integrated Care for People Living With Huntington's Disease in England

NCT05828992 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 60

Last updated 2023-05-19

No results posted yet for this study

Summary

The survey and full study information can be accessed here: https://southampton.qualtrics.com/jfe/form/SV\_8iEedDJZy4xaiI6

The goal of this anonymous survey is to benchmark integrated care from the perspective of service users in adults living with Huntington's Disease, including informal caregivers. The main question it aims to answer is: Is standard of care for people living with HD in England person-centred integrated care from the perspective of service users?

Participants will complete a one-time anonymous survey either online or on paper, according to their preference, that takes an average of 20-30 minutes. Participants can take breaks as needed, picking up the survey from where it was paused.

Conditions

  • Huntington Disease

Interventions

OTHER

No intervention administered

Survey only to gather people's experiences, opinions and needs.

Sponsors & Collaborators

  • National Institute for Health Research, United Kingdom

    collaborator OTHER_GOV

  • Central Coast Research Institute for Integrated Care, Australia

    collaborator UNKNOWN

  • University Hospital Southampton NHS Foundation Trust

    collaborator OTHER

  • University of Southampton

    lead OTHER

Principal Investigators

  • Sandra B Pires, MSc · University of Southampton

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2023-02-28
Primary Completion
2023-11-30
Completion
2024-02-29

Countries

  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05828992 on ClinicalTrials.gov