Knowledge of Living Will in Patients With Rheumatic Diseases

Summary

The living will is a legal document derived from a communication and deliberation process, medical ethical aspect, currently regulated in Mexico by the General Health Law and the Health Law of Mexico City.

Knowledge of living will in the population with chronic diseases, including rheumatic diseases, has been little addressed. Most patients do not know what the living will document is, so they do not carry it out and others, despite knowing it, have a passive attitude toward doing it.

Conditions

• Rheumatic Disorder

Interventions

OTHER

Health Assessment Questionnaire (HAQ)

The HAQ is based on five patient-centered dimensions: disability, pain, medication effects, costs of care, and mortality

OTHER

Depression, Anxiety and Stress Scale (DASS-21)

DASS-21 is a set of three self-report scales designed to measure the emotional states of depression, anxiety, and stress. Each of the three DASS-21 scales contains 7 items, divided into subscales with similar content

OTHER

Brief Resilient Coping Scale

Brief Resilient Coping Scale is a 4-item measure designed to capture tendencies to cope with stress in a highly adaptive manner

OTHER

WHOQOL-BREF

WHOQOL-BREF is a 26-item instrument consisting of four domains: physical health, psychological health, social relationships, and environmental health; it also contains QOL and general health items

OTHER

Routine assessment of patient index data 3 (RAPID-3)

RAPID- 3 measures: function, pain, and patient global estimate of status. Each of the 3 individual measures is scored 0 to 10, for a total of 30

OTHER

Rheumatic disease comorbidity index

It is rated from 0 to 9 and comprises 11 comorbid conditions including lung disease, cardio-vascular disease, hypertension, diabetes, fracture, depression, cancer, and gastrointestinal ulcer

OTHER

Living will questionnaire

A questionnaire with 17 items about knowledge of the living will.

OTHER

Perceptions of Health Outcomes Questionnaire

A questionnaire with 7 items about the probability of quitting the job, getting an infectious disease, requiring emergency medical attention, hospitalization or intensive care, dependence and death.

Sponsors & Collaborators

• National Institute of Medical Sciences and Nutrition, Salvador Zubiran

  lead OTHER

Principal Investigators

• Virginia Pascual-Ramos, Dr. · National Institute of Medical Sciences and Nutrition, Salvador Zubiran

Eligibility

Min Age

18 Years

Max Age

100 Years

Sex

ALL

Healthy Volunteers

Yes

Timeline & Regulatory

Start

2023-02-01

Primary Completion

2023-07-31

Completion

2024-07-31

Countries

• Mexico

Study Locations