Information Support Using an Online Learning Platform for Malaysian Pediatric Leukemia and Lymphoma Parents

Summary

This is a study protocol to determine whether it is feasible to support parents of children with blood cancers by providing information over an online learning platform. This study will be conducted in Malaysia. An online learning platform will be used to provide information relevant to parents who care for children diagnosed with leukemia or lymphoma. The use of this platform will be compared with current usual care, where only verbal discussions and ad hoc caregiver training is provided to support these parents, based on the clinician's judgement. Participants knowledge and confidence level in caregiving as well as coping will be compared between the two groups. To determine the feasibility of this method of information support, the researchers will also obtain feedback from participants who used the online learning platform and determine whether there are many who drop out from using it. The findings will determine whether use of online learning platform is suitable to deliver information support for parents, in view of currently limited resources for supportive care in childhood cancer care in Malaysia.

Conditions

• Pediatric Acute Myeloid Leukemia
• Pediatric Acute Lymphoid Leukemia
• Pediatric Non-Hodgkin Lymphoma
• Pediatric Hodgkin Lymphoma

Interventions

OTHER

eHOPE

e-Haematological Oncology Parents Education (eHOPE) consists of caregiving information for parents of children with leukaemia and lymphoma, presented in multimedia format through an online learning platform. The contents are developed in Malay language, encompassing basic information on disease and treatment, medical caregiving, emotional caregiving, appraising information, communication and self-care. Parents will be able to access multimedia information designed to support them in the care of their sick child. There are 4 self-paced activities in eHOPE with the following objectives: 1. Parents should be able to outline key tasks related to care for their child at home. 2. Parents should be able to outline strategies to initiate discussions with their child's healthcare providers. 3. Parents should be able to appraise reliability of information sources. 4. Parents should be able to identify coping strategies that they can use when faced with stressful situations.

OTHER

Usual care

Face-to-face verbal discussions and caregiver training will be provided as deemed necessary by the clinicians.

Sponsors & Collaborators

• Universiti Putra Malaysia

  collaborator OTHER

• Ministry of Health, Malaysia

  collaborator OTHER_GOV

• Universiti Kebangsaan Malaysia Medical Centre

  lead OTHER

Principal Investigators

• Chai Eng Tan · National University of Malaysia

Study Design

Allocation

RANDOMIZED

Purpose

SUPPORTIVE_CARE

Masking

NONE

Model

PARALLEL

Eligibility

Min Age

18 Years

Sex

ALL

Healthy Volunteers

Yes

Timeline & Regulatory

Start

2022-07-15

Primary Completion

2023-03-31

Completion

2023-03-31

Countries

• Malaysia

Study Locations