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The Severe Von Willebrand Disease (sVWD) Patient Registry

NCT05437536 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 400

Last updated 2026-04-22

No results posted yet for this study

Summary

A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to create a database of well-characterized (with respect to demographics, medical history, symptoms, laboratory and genetic data, etc.) patients with sVWD for participation in retrospective and prospective research.

Conditions

  • VWD - Von Willebrand's Disease

Sponsors & Collaborators

  • VWD Connect Foundation

    lead OTHER

Principal Investigators

  • Christopher Walsh, MD, PhD · Mt. Sinai School of Medicine

  • Mrinal Gounder, MD · Memorial Sloan Kettering Cancer Center

  • Christina Morgenthaler, MS, MBA · VWD Connect Foundation

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2021-12-10
Primary Completion
2031-12-31
Completion
2031-12-31

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05437536 on ClinicalTrials.gov