Pulmonary Fibrosis Foundation Community Registry
NCT05382572 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 10000
Last updated 2025-04-11
Summary
Pulmonary fibrosis (PF) results from a diverse group of health conditions and affects the lives of patients (including those who are post lung transplant), caregivers and family members. The Pulmonary Fibrosis Foundation Community Registry will offer an online portal where participants can self-enroll and directly contribute information about their experience with PF to be compiled into a longitudinal data set for use by researchers.
Conditions
Sponsors & Collaborators
- collaborator OTHER
-
Pulmonary Fibrosis Foundation
lead OTHER
Principal Investigators
-
Kevin R Flaherty, MD · Pulmonary Fibrosis Foundation
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- Yes
Timeline & Regulatory
- Start
- 2022-07-11
- Primary Completion
- 2027-07-01
- Completion
- 2027-07-01
Countries
- United States
Study Locations
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