Identification of Modifying Factors in Hereditary Spastic Paraplegia
NCT05373082 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 311
Last updated 2023-10-31
Summary
A first questionnaire - MODIFSPA conducted in 2014 - identified several environmental factors influencing spasticity in HSP: cold, fatigue, and especially physical activity. In order to improve the care of patients with HSP, The investigator team are looking to deepen the knowledge on physical exercises relieving spasticity as well as to better know the frequency of symptoms requiring additional medical care: fatigue and vesico-sphincter disorders. A new questionnaire was therefore created to collect additional information to optimize the care of patients with HSP.
Conditions
- Hereditary Spastic Paraplegia
Interventions
- OTHER
-
questionnaire completion
Questionnaire to be completed by patients
Sponsors & Collaborators
-
Assistance Publique - Hôpitaux de Paris
lead OTHER
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2022-10-04
- Primary Completion
- 2023-10-03
- Completion
- 2023-10-03
Countries
- France
Study Locations
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