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A National Retrospective Population Based Cohort Study of the Natural History of Ataxia Telangiectasia

NCT04991701 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 178

Last updated 2021-10-12

No results posted yet for this study

Summary

This is a retrospective observational study of natural-history of ataxia-telangiectasia. Understanding the natural history and its variability is not only vital to planning effective patient-centred services, and counselling patients and their families, but will also inform the design of future clinical research, particularly clinical trials.

Conditions

  • Ataxia Telangiectasia

Sponsors & Collaborators

  • Nottingham University Hospitals NHS Trust

    collaborator OTHER

  • Royal Papworth Hospital

    collaborator OTHER_GOV

  • University of Nottingham

    lead OTHER

Principal Investigators

  • Shalini Ojha, PhD · University of Nottingham

Eligibility

Min Age
0 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2018-09-14
Primary Completion
2021-08-04
Completion
2022-12-31

Countries

  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04991701 on ClinicalTrials.gov