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Registry to Collect Health Information Related to Fibrolamellar Cancer

NCT04874519 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 12

Last updated 2025-11-12

No results posted yet for this study

Summary

The purpose of this study is to collect information about people with fibrolamellar cancer (FLC). This study is a registry of people with FLC around the world. This study will involve collecting information about participants, their medical history and the regular medical care they receive for FLC. The study will not provide treatment for your cancer.

Conditions

Interventions

BEHAVIORAL

Questionnaire

The questionnaire will be completed at the time of enrollment, every month, and at the end of study. Regardless of current interventions or lack of, assessments will be completed at enrollment and then monthly for a total of 18 months. In order to provide reasonable flexibility to participants, physicians, and study teams, the assessments can be completed within 30 days of the last assessment. The next month will be recalculated based on last reporting date.

Sponsors & Collaborators

Principal Investigators

  • Ghassan Abou-Alfa, MD, MBA · Memorial Sloan Kettering Cancer Center

Eligibility

Min Age
13 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2021-11-24
Primary Completion
2025-11-10
Completion
2025-11-10

Countries

  • United States

Study Locations

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Entities

Diseases
Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04874519 on ClinicalTrials.gov