Long-Chain Fatty Acid Oxidation Disorders Online Disease Monitoring Program
NCT04812106 · Status: TERMINATED · Type: OBSERVATIONAL · Enrollment: 8
Last updated 2022-11-18
Summary
The objectives of this study are to characterize the disease impact, the disease management and resource utilization, and provide benefits to the LC-FAOD community, by use of a convenient online platform for participants (or caregivers) to self-report information.
Conditions
- Long-chain Fatty Acid Oxidation Disorders (LC-FAOD)
Interventions
- OTHER
-
No Intervention
No Intervention
Sponsors & Collaborators
- lead INDUSTRY
Principal Investigators
-
Medical Director · Ultragenyx Pharmaceutical Inc
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2022-07-25
- Primary Completion
- 2022-10-27
- Completion
- 2022-10-27
Countries
- United States
Study Locations
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