Thalassemia Knowledge in Young People of Indonesia

NCT04706585 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 1010

Last updated 2021-05-11

No results posted yet for this study

Summary

There is still an ongoing lack of awareness about thalassemia among Indonesians despite high disease prevalence, and this is associated with poor implementation of preventive and promotive measures. Thalassemia experts argue that education and raising awareness about thalassemia must be done from an early age in order to relieve the heavy disease burden of thalassemia, especially in Indonesia as it is geographically located in the thalassemia belt. In spite of this, there has been limited research on public perception towards thalassemia in Indonesia, particularly among young people.

In this study, the researcher will ask young people in Indonesia between the age of 15-24 who are currently attending high school or university-level education to fill in an online survey. The survey consists of questions about the participants' demographic information as well as their knowledge, attitude, and practice (KAP) scores towards thalassemia. The study is expected to run from December 2020 to March 2021, with the online survey distributed in January 2021. Data collection will immediately follow, and it will be analyzed using univariate, bivariate, and multivariate analysis using the appropriate statistical tests. The findings gathered from this study will be vital in providing new insight into how the youth sees thalassemia in Indonesia. Such public health information will prove to be important in designing successful thalassemia intervention and education programs for Indonesian youth.

Conditions

Sponsors & Collaborators

  • Fakultas Kedokteran Universitas Indonesia

    lead OTHER

Principal Investigators

  • Pustika A Wahidiyat, Professor. · Fakultas Kedokteran Universitas Indonesia

  • Mikhael Yosia, Dr. · Fakultas Kedokteran Universitas Indonesia

  • Edward C Yo · Fakultas Kedokteran Universitas Indonesia

  • Muhammad M Wildani · Fakultas Kedokteran Universitas Indonesia

  • Visabella R Triatmono · Fakultas Kedokteran Universitas Indonesia

Eligibility

Min Age
15 Years
Max Age
24 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2021-06-01
Primary Completion
2021-07-01
Completion
2021-10-10

Countries

  • Indonesia

Study Locations

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Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04706585 on ClinicalTrials.gov