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Redesigning the Care Journey of Patients With Single-ventricle Congenital Heart Disease

NCT04613934 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 142

Last updated 2021-04-28

No results posted yet for this study

Summary

In this three-party collaboration, which includes The Texas Center for Pediatric and Congenital Heart Disease, the Value Institute for Health and Care, and the Design Institute for Health, all from University of Texas (UT) Dell Medical School, the investigators will explore how patient insights, data, storytelling, ideation, and prototyping can be employed to design a care delivery solution that enables patient outcome improvement. The goal of this project is to understand the life journey of patients with single-ventricle congenital heart disease and understand areas of that journey that can be improved. As such, the project intentionally does not start with a hypothesis, but instead seeks to gain insight of single-ventricle patients' care journey and based on that understanding identify opportunities for improvement.

Conditions

  • Single-ventricle
  • Congenital Heart Disease

Sponsors & Collaborators

  • University of Texas at Austin

    lead OTHER

Principal Investigators

  • Carlos M Mery, MD, MPH · University of Texas at Austin

Eligibility

Min Age
6 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-02-04
Primary Completion
2020-10-16
Completion
2020-10-16

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04613934 on ClinicalTrials.gov