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Neurofilament Surveillance Project (NSP)

NCT04516499 · Status: ACTIVE_NOT_RECRUITING · Type: OBSERVATIONAL · Enrollment: 342

Last updated 2025-10-29

No results posted yet for this study

Summary

This is a biomarker study designed to collect and analyze blood specimens from individuals carrying known familial frontotemporal lobar degeneration (f-FTLD) mutations compared to a control group of individuals without known f-FTLD mutations. The NSP is an ancillary study to the ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration" (ALLFTD) study, NCT04363684. More information can be found at https://www.allftd.org/.

Conditions

  • Frontotemporal Dementia
  • Frontotemporal Lobar Degeneration
  • FTD-GRN
  • FTD
  • FTLD

Sponsors & Collaborators

Principal Investigators

  • Adam Boxer, MD, PhD · University of California, San Francisco

  • Bradley Boeve, MD · Mayo Clinic

  • Howie Rosen, MD · University of California, San Francisco

  • Laura Mitic, PhD · The Bluefield Project to Cure Frontotemporal Dementia

Eligibility

Min Age
18 Years
Max Age
85 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2020-09-02
Primary Completion
2027-02-28
Completion
2027-02-28

Countries

  • United States

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04516499 on ClinicalTrials.gov