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Health Insurance Literacy and Challenges in Accessing Health Services in Niemann-Pick

NCT04469894 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 76

Last updated 2020-10-06

No results posted yet for this study

Summary

This study is a US based qualitative PRO research study to document the health insurance literacy as well as the patient experience in Niemann-Pick as it relates to accessing desired care, services and medications for patients.

The outcome of this research will be used to inform various other workstreams as NNPDF works to assist families.

The core research objectives are to understand the following from Niemann-Pick patients and their families in the US

Conditions

  • Niemann-Pick Diseases

Sponsors & Collaborators

Principal Investigators

  • George A Diaz, MD, PhD · Icahn School of Medicine at Mount Sinai

  • Justin Hopkin, MD · National Niemann-Pick Disease Board Chair

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-06-15
Primary Completion
2020-09-21
Completion
2020-09-21

Countries

  • United States

Study Locations

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Entities

Companies

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04469894 on ClinicalTrials.gov