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Rate of Progression in EYS Related Retinal Degeneration

NCT04127006 · Status: ACTIVE_NOT_RECRUITING · Type: OBSERVATIONAL · Enrollment: 103

Last updated 2026-03-04

No results posted yet for this study

Summary

The overall goal of this project funded by the Foundation Fighting Blindness is to characterize the natural history of disease progression in patients with EYS mutations in order to accelerate the development of outcome measures for clinical trials.

Conditions

Sponsors & Collaborators

  • Foundation Fighting Blindness

    collaborator OTHER

  • Jaeb Center for Health Research

    lead OTHER

Principal Investigators

  • Mark Pennesi, MD, PhD · Retina Foundation of the Southwest

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-02-25
Primary Completion
2026-04-01
Completion
2026-04-01

Countries

  • United States
  • Canada
  • Finland
  • France
  • Germany
  • Israel
  • Netherlands

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04127006 on ClinicalTrials.gov