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Investigation of Parents' Anxiety Level and Health Related Quality of Life in Different Types of Physical Disabilities

NCT04035967 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 91

Last updated 2019-07-29

No results posted yet for this study

Summary

Disability brings many psychosocial problems in society. The effects of the health of a disabled child on the psychological health and quality of life of the family are inevitable. It has been shown that families with disabled children are exposed to chronic stress, have communication problems and social isolation between parents, and have to spend extra time for the care of children. It is reported in the literature that parents with mentally or physically handicapped children are more stressed and have higher levels of anxiety than parents without children with disabilities. Since activity limitations, participation restrictions, and social and physical barriers are different in each disability group, caregivers may be affected differently. Comparing the quality of life of caregivers of different disability groups and guiding the family in line with the results obtained is important for public health.As the time spent on care may vary in different types of disability, families' levels of distress and anxiety may also be different.There are no studies in the literature comparing the anxiety level of the parents of the individuals with Muscular Dystrophy (MD), Spina Bifida (SB), Cerebral Palsy (SP) and Down Syndrome (DS), which have a very important place in the permanent disability groups, by evaluating the family effect levels and health-related quality of life. . For this reason, this study was planned to investigate the quality of life, anxiety, level of disease and social effects of mothers with different physical disabilities.

Conditions

  • Cerebral Palsy
  • Down Syndrome
  • Spina Bifida
  • Muscular Dystrophy
  • Parents

Interventions

OTHER

Questionnaire

Impact on Family Scale (IPFAM), WeeFIM Pediatric Functional Independence Measurement, Nottingham Health Profile. State-Trait Anxiety Inven¬tory (STAI-I and STAI-II), PEDI (Pediatric Evaulation of Disability Inventory)

Sponsors & Collaborators

  • Sanko University

    lead OTHER

Principal Investigators

  • Hatice Adıgüzel · Sanko University

  • Bülent Elbasan, Ass. Prof. · Gazi University

  • Nevin Ergun, Prof. · Sanko University

Eligibility

Min Age
24 Years
Max Age
70 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2017-05-01
Primary Completion
2019-05-01
Completion
2019-05-01

Countries

  • Turkey (Türkiye)

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT04035967 on ClinicalTrials.gov