PRospective Observational Multicentre Study on VAriability of Lung Function in Stable PCD Patients

Summary

Using routinely collected clinical data, this study aims to quantify intra-individual (i.e. in the same individual) variations between measurements of lung function in stable patients with primary ciliary dyskinesia (PCD), a rare genetic disease that causes lung damage.

Conditions

• Primary Ciliary Dyskinesia

Interventions

OTHER

Lung function measurement

Spirometry-derived lung function measurements

Sponsors & Collaborators

• University of Bern

  collaborator OTHER

• Assistance Publique - Hôpitaux de Paris

  collaborator OTHER

• University of Melbourne

  collaborator OTHER

• Universitaire Ziekenhuizen KU Leuven

  collaborator OTHER

• University Hospital, Motol

  collaborator OTHER

• Copenhagen University Hospital, Denmark

  collaborator OTHER

• University Hospital Muenster

  collaborator OTHER

• Hacettepe University

  collaborator OTHER

• University of Cyprus

  collaborator OTHER

• University of Sydney

  collaborator OTHER

• Ruhr University of Bochum

  collaborator OTHER

• Marmara University

  collaborator OTHER

• Royal Brompton & Harefield NHS Foundation Trust

  collaborator OTHER

• Meyer Children's Hospital IRCCS

  collaborator OTHER

• Federico II University

  collaborator OTHER

• Bambino Gesù Hospital and Research Institute

  collaborator OTHER

• University of Valencia

  collaborator OTHER

• Universidade Nova de Lisboa

  collaborator OTHER

• Hospital Vall d'Hebron

  collaborator OTHER

• University of Southampton

  lead OTHER

Eligibility

Sex

Healthy Volunteers

No

Timeline & Regulatory

Start

2017-08-23

Primary Completion

2019-07-31

Completion

2019-12-31

Countries

• United Kingdom

Study Locations