Italian Angelman Syndrome Registry
NCT03650569 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 82
Last updated 2026-02-27
Summary
The Italian Angelman Registry is a national registry for patients with Angelman Syndrome. No experimental intervention is involved in participation. The data provided are stored in the registry according the EU General Data Protection Regulation (GDPR, enforced on 25 May 2018), unless participants wish to withdraw their child/ adult's information from the registry.
Conditions
Sponsors & Collaborators
-
FROM- Fondazione per la Ricerca Ospedale di Bergamo- ETS
lead OTHER
Principal Investigators
-
Pier Luigi Carriero · FROM
Eligibility
- Min Age
- 1 Day
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2018-02-16
- Primary Completion
- 2021-02-16
- Completion
- 2022-02-16
Countries
- Italy
Study Locations
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