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Verification of the Epidemiology and Mortality of Rare Diseases in Taiwan With Real-world Evidence

NCT05367115 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 5000

Last updated 2023-04-04

No results posted yet for this study

Summary

This study aims to explore the longitudinal incidence and prevalence trends of selected muscular and bone-related rare diseases, i.e., Familial Amyloidotic Polyneuropathy (FAP), Primary hyperoxaluria, Wilson's disease, Cystic fibrosis, Osteogenesis imperfecta, Porphyria, and Primary Paget disease, and analyze healthcare utilization.

Conditions

  • Rare Diseases
  • Epidemiology
  • Morbidity
  • Morality
  • Comorbidities and Coexisting Conditions
  • Health Care Utilization

Interventions

OTHER

longitudinal observational study

longitudinal observational study

Sponsors & Collaborators

  • National Cheng-Kung University Hospital

    lead OTHER

Principal Investigators

  • Chih-Hsing Wu, MD · National Cheng Kung University

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-12-09
Primary Completion
2021-12-31
Completion
2022-04-30

Countries

  • Taiwan

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT05367115 on ClinicalTrials.gov