Patient Reported Outcomes Burdens and Experiences - Phase 3

NCT03549858 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1000

Last updated 2025-08-22

No results posted yet for this study

Summary

The PROBE Phase-3 study will collect data on patient reported outcomes, burdens, and experiences in patients living with hemophilia. The investigators will perform comparisons among countries, within country over time, within country against national normative data.

Conditions

Interventions

OTHER

Quality of life measure (survey)

The QoL tool is a questionnaire

Sponsors & Collaborators

  • Patient Outcomes Research Group (PORG)

    collaborator UNKNOWN
  • National Hemophilia Foundation

    collaborator UNKNOWN
  • McMaster University

    lead OTHER

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2018-01-01
Primary Completion
2027-12-31
Completion
2027-12-31

Countries

  • Canada

Study Locations

More Related Trials

Entities

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03549858 on ClinicalTrials.gov