Duchenne Muscular Dystrophy Heart Study

NCT03443115 · Status: UNKNOWN · Type: OBSERVATIONAL · Enrollment: 700

Last updated 2018-02-22

No results posted yet for this study

Summary

Retrospective cohort study including patients with genetically proven Duchenne muscular dystrophy, diagnosed from January 1993 to March 2020.

Inclusion of the data relative to genetic diagnosis, clinical characteristics at baseline, cardiac and respiratory workup, medical treatments (ACE inhibitors, steroids), surgical procedures, and occurrence during follow-up of cardiac, respiratory and fatal events.

Objectives are to describe long-term natural history of the disease, vital prognosis, genotype-phenotype correlations, effect of treatments.

Conditions

Sponsors & Collaborators

  • Association Monégasque contre les Myopathies

    collaborator UNKNOWN
  • Hôpital Cochin

    lead OTHER

Eligibility

Sex
MALE
Healthy Volunteers
No

Timeline & Regulatory

Start
2017-06-27
Primary Completion
2018-02-16
Completion
2020-03-15

Countries

  • France

Study Locations

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Entities

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03443115 on ClinicalTrials.gov