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Trends in Prevalence and Comorbidities of Children With Cerebral Palsy in Norway

NCT03413566 · Status: ENROLLING_BY_INVITATION · Type: OBSERVATIONAL · Enrollment: 707916

Last updated 2019-05-15

No results posted yet for this study

Summary

Many studies have reported that the prevalence of cerebral palsy (CP) has been relatively stable and is mainly due to events before birth and therefore cannot be prevented. However, these studies were undertaken in populations born towards the end of the last century. There has since been significant improvement in both obstetrical and neonatal intensive care.

The main aim is to investigate trends in the prevalence and clinical characteristics of children with CP in Norway born from 1996 to 2010 in order to gain a modern understanding of the panorama of CP in Norway. The investigators suspect that improved methods of obstetrical and neonatal care introduced in Norway during the last 20 years has resulted in a decrease in the prevalence of CP as well as in the proportion of children with severe CP subtypes and comorbidities. The long term aim is to improve the quality of pregnancy care and newborn medicine for children at risk of CP, and to ensure equal diagnostics and treatment of patients with CP, regardless of place of residence in Norway.

For this project, the investigators will use data from three national health registers: The Cerebral Palsy Registry of Norway (CPRN), The Medical Birth Registry of Norway and The Norwegian Patient Registry (NPR). The use of data from these high quality health registries provides us with a unique opportunity to study our aims on a population level, as well as per health region/health trust.

Conditions

  • Cerebral Palsy

Interventions

OTHER

Clinical diagnosis

A clinical diagnosis of cerebral palsy given by a pediatrician at a habilitation center in Norway.

Sponsors & Collaborators

  • Norwegian University of Science and Technology

    collaborator OTHER

  • Norwegian Institute of Public Health

    collaborator OTHER_GOV

  • Sykehuset i Vestfold HF

    lead OTHER

Principal Investigators

  • Guro L Andersen, MD, PhD · Vestfold Hospital Trust/The Cerebral Palsy Registry of Norway

Eligibility

Min Age
5 Years
Max Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2017-01-01
Primary Completion
2020-12-31
Completion
2030-12-31

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03413566 on ClinicalTrials.gov