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Aligning Patient Preferences: a Role Offering Alzheimer's Patients, Caregivers, and Healthcare Providers Education and Support

NCT03323502 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 47396

Last updated 2025-12-11

Study results available
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Summary

Nursing home (NH) patients with Alzheimer's disease and related dementias often receive unwanted, burdensome treatments such as hospitalization. Advance care planning (ACP) is a key strategy to support patients and family-caregivers in making informed decisions and ensuring treatment preferences are proactively known and honored. The ACP Specialist Program will improve care and reduce unwanted, burdensome hospitalizations through improved ACP procedures, standardized staff education on ACP, and systematic ACP facilitation delivered by existing NH staff.

Conditions

Interventions

BEHAVIORAL

APPROACHES ACP Specialist Program

The APPROACHES Advance Care Planning (ACP) Specialist will work with nursing home leaders (in intervention arm facilities) to: i. Consolidate nursing home ACP procedures; ii. Train and educate staff; and iii. Facilitate ACP Specialist Program with patients who have Alzheimer's disease/related dementias and their family caregivers.

OTHER

Standard of care

Standard of care Advance Care Planning (ACP) procedures

Sponsors & Collaborators

  • National Institute on Aging (NIA)

    collaborator NIH

  • Hebrew SeniorLife

    collaborator OTHER

  • Regenstrief Institute, Inc.

    collaborator OTHER

  • Indiana University

    lead OTHER

Principal Investigators

  • Susan Hickman, PhD · Indiana University

Study Design

Allocation
RANDOMIZED
Purpose
SUPPORTIVE_CARE
Masking
NONE
Model
PARALLEL

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2020-02-01
Primary Completion
2022-08-31
Completion
2022-08-31

Countries

  • United States

Study Locations

More Related Trials

Entities

Diseases

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03323502 on ClinicalTrials.gov