MedTrace Logo

Registry for Patients With X-Linked Hypophosphatemia

NCT03193476 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1343

Last updated 2024-09-19

No results posted yet for this study

Summary

This is an international, multicentre, prospective, non-interventional, observational Registry of patients with X-Linked hypophosphatemia (XLH). The main objective of this XLH Registry is to collect data to characterise the treatment, progression and long-term outcomes of XLH in both adult and paediatric settings.

Conditions

  • X-Linked Hypophosphatemia

Sponsors & Collaborators

  • Iqvia Pty Ltd

    collaborator INDUSTRY

  • Kyowa Kirin Pharmaceutical Development Ltd

    lead INDUSTRY

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2017-09-12
Primary Completion
2029-02-01
Completion
2029-07-01

Countries

  • Belgium
  • Bulgaria
  • Czechia
  • Denmark
  • France
  • Germany
  • Hungary
  • Ireland
  • Israel
  • Italy
  • Latvia
  • Netherlands
  • Norway
  • Portugal
  • Slovakia
  • Slovenia
  • Spain
  • Sweden
  • Switzerland
  • United Kingdom

Study Locations

More Related Trials

Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT03193476 on ClinicalTrials.gov