Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

Summary

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.

Conditions

• Pulmonary Vascular Disease
• Pulmonary Arterial Hypertension

Sponsors & Collaborators

• National Heart, Lung, and Blood Institute (NHLBI)

  collaborator NIH

• Janssen Pharmaceuticals

  collaborator INDUSTRY

• New York Medical College

  lead OTHER

Principal Investigators

• Steven H Abman, MD · Children's Hospital Colorado

• David D Ivy, MD · Children's Hospital Colorado

• Kenneth D Mandl, MD · Boston Children's Hospital, Harvard School of Medicine

• Roberta Keller, MD · University California San Francisco

• Rachel Hopper, MD · Stanford University

• Angela Bates, MD · University of Alberta Edmonton

• Catherine Avitabile, MD · Children's Hospital of Philadelphia

• Mary Mullen, MD · Boston Children's Hospital

• Eric Austin, MD · Vanderbilt University Medical Center

• Marc Natter, MD · Boston Children's Hospital

• Usha Krishnan, MD · Columbia University

• Lynn A Sleeper, ScD · Boston Children's Hospital

• Erika Rosenzweig, MD · Maria Fareri Children's Hospital at WMC Health/Westchester Medical Center

• Jenny Schramm, MD · Johns Hopkins University

• Lewis Romer, MD · Johns Hopkins University

• Grace Freire, MD · Johns Hopkins All Children's Heart Institute

• Stephanie Handler, MD · Children's Hospital Wisconsin

• Nidhy Varghese, MD · Baylor College of Medicine

• Russel Hirsch, MD · Children's Hospital Medical Center, Cincinnati

• Delphine Yung, MD · Seattle Children's Hospital

Eligibility

Min Age

1 Day

Max Age

21 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2014-10-31

Primary Completion

2030-12-31

Completion

2031-12-31

Countries

• United States
• Canada

Study Locations