Development of Clinical Database of Individuals With Smith-Magenis Syndrome and Sleep Disturbances
NCT03154697 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 1000
Last updated 2024-03-20
Summary
This database will be used to better understand the sleep problems of people with SMS. This clinical database will be a part of a larger Smith-Magenis Patient Registry used to create an awareness campaign around SMS and the sleep disturbances that are characteristic of the disorder.
Conditions
- Sleep Disturbances in Smith-Magenis Syndrome
Interventions
- OTHER
-
Data collection of sleep disturbances in individuals with SMS
Data related to Smith-Magenis syndrome and sleep disturbances are collected through a web or phone survey
Sponsors & Collaborators
- lead INDUSTRY
Eligibility
- Min Age
- 3 Years
- Max Age
- 65 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2016-01-31
- Primary Completion
- 2030-12-31
- Completion
- 2030-12-31
Countries
- United States
Study Locations
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