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International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases

NCT02918032 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 120

Last updated 2026-02-05

No results posted yet for this study

Summary

This study aims to understand the state of onset of NLSD(neutral lipid storage disease) / TGCV(triglyceride deposit cardiovasculopathy) worldwide, background information of affected patients, and natural history of the disease, as well as exploring the prognostic factors and assessing the efficacy of disease-specific treatment.

Conditions

  • Neutral Lipid Storage Disease

Sponsors & Collaborators

  • Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan

    lead OTHER

Principal Investigators

  • Kenichi Hirano, MD, Ph.D · Department of Cardiovascular Medicine, Faculty of Internal Medicine, Graduate School of Osaka University

Eligibility

Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2014-01-31
Primary Completion
2028-03-31
Completion
2028-03-31

Countries

  • United States
  • Austria
  • China
  • France
  • Germany
  • Italy
  • Japan
  • Netherlands
  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02918032 on ClinicalTrials.gov