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My Care My Call: Peer-Led Health Empowerment Training in Chronic Spinal Cord Injury

NCT02878070 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 86

Last updated 2016-08-25

No results posted yet for this study

Summary

My Care My Call (MCMC) is an innovative, peer-led telephone intervention designed to empower adults with chronic spinal cord injury (SCI) in the self-management of their primary health care needs to prevent secondary conditions. In a randomized controlled trial, participants assigned to the MCMC intervention receive tapered calls from a Peer Health Coach (PHC) for six months. PHCs are experienced, empathetic peer mentors living with SCI who act as supporters, role models, and advisors, providing goal-setting support, motivation, education, and resource referral to participants. Participants complete surveys at baseline, 2, 4, and 6-months, as well as qualitative exit phone interviews.

It is hypothesized that MCMC will: 1) Increase participants' self-advocacy in health care interactions as reflected in increases in three domains of self-advocacy: assertiveness, illness education, and potential for mindful non-adherence, 2) Increase participants' self-efficacy for health care navigation, preference for involvement in, and satisfaction with their primary care physician (PCP), and 3) Increase health related quality of life and medical social support compared with those receiving usual care. Additional secondary hypotheses state that the MCMC intervention will increase access to primary care and use of preventive screening services compared with those receiving usual care.

Conditions

  • Spinal Cord Injuries

Interventions

BEHAVIORAL

Calls from a Peer Health Coach for 6 months

Weekly calls for 2 months, bi-weekly calls for 2 months, monthly calls for 2 months.

Sponsors & Collaborators

  • Gaylord Hospital

    collaborator UNKNOWN

  • Hospital for Special Care

    collaborator UNKNOWN

  • National Institute on Disability, Independent Living, and Rehabilitation Research

    collaborator FED

  • Boston University

    lead OTHER

Principal Investigators

  • Alan Jette, PT, PhD · Boston University

Study Design

Allocation
RANDOMIZED
Purpose
PREVENTION
Masking
DOUBLE
Model
PARALLEL

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2015-01-31
Primary Completion
2016-03-31
Completion
2016-03-31

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02878070 on ClinicalTrials.gov