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Enlarged Vestibular Aqueduct Registry

NCT02798783 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 165

Last updated 2023-12-06

No results posted yet for this study

Summary

People with the congenital anatomical malformation known as "Enlarged Vestibular Aqueduct" (EVA) may experience decline in hearing ability. This is an online registry to gather patient experiences with EVA, with the goal of providing future researchers with the information necessary to better evaluate and make recommendations for patients with EVA. Data will be obtained from volunteers who enroll and submit their information on a website, https://eva.uhhospitals.org, and a limited data set may be provided to researchers interested in analyzing repository data. The limited data set would not contain any identifiable information except for ages, dates such as date of diagnosis, or city/state of residence.

EVA Research Project Website: http://rainbow.org/EVAResearch

EVA Patient Registry Website: https://eva.uhhospitals.org

Conditions

  • Enlarged Vestibular Aqueduct
  • Sensorineural Hearing Loss

Sponsors & Collaborators

  • University Hospitals Cleveland Medical Center

    lead OTHER

Principal Investigators

  • Todd D Otteson, MD, MPH · University Hospitals Cleveland Medical Center

  • Cliff Megerian, MD · University Hospitals Cleveland Medical Center

  • Benjamin A Reinthal · University Hospitals Cleveland Medical Center

  • Mustafa S Ascha, MS · University Hospitals Cleveland Medical Center

Eligibility

Max Age
90 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2021-06-29
Primary Completion
2023-06-02
Completion
2023-06-02

Countries

  • United States

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02798783 on ClinicalTrials.gov