Allied Cleft & Craniofacial Quality-Improvement and Research Network (ACCQUIREnet)

Summary

The Allied Cleft \& Craniofacial Quality-Improvement and Research Network (ACCQUIREnet) is a group of multidisciplinary cleft teams that have implemented a system for prospective collection of outcomes data, based on the ICHOM Standard Set for the Comprehensive Appraisal of Cleft Care, CLEFT-Q, and other outcomes instruments. Participating cleft teams may analyze clinical and psychosocial outcomes related to care of the child with cleft lip and/or palate (CL/P), compare its performance with those of other cleft centers, and identify opportunities for quality improvement.

Conditions

• Cleft Lip
• Cleft Palate
• Cleft Lip and Palate

Interventions

PROCEDURE

cleft lip repair

PROCEDURE

cleft palate repair

PROCEDURE

oronasal fistula repair

PROCEDURE

pharyngoplasty

PROCEDURE

gingivoperiosteoplasty

PROCEDURE

LeFort-1 maxillary repositioning

PROCEDURE

rhinoplasty

PROCEDURE

myringotomy and tympanostomy tube placement

OTHER

speech therapy

PROCEDURE

orthodontia

PROCEDURE

presurgical orthopedics

DEVICE

sound amplification for hearing

Sponsors & Collaborators

• Duke University

  lead OTHER

Principal Investigators

• Alexander C Allori, MD, MPH · Duke University

Eligibility

Min Age

1 Day

Max Age

22 Years

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2016-10-31

Primary Completion

2031-12-31

Completion

2031-12-31

Countries

• United States
• Canada

Study Locations