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Frequency of Common Medical Conditions in People With and Without HHT

NCT02464644 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 2174

Last updated 2023-09-28

No results posted yet for this study

Summary

Hereditary Hemorrhagic Telangiectasia (HHT) affects 1 in 5,000 people. The purpose of this study is to provide data regarding the frequency of common health conditions and the tolerability of therapies in HHT by using a questionnaire.

This will be filled in by both people with HHT, and controls who will be members of the general population without HHT.

The questionnaire has been designed primarily for web based entry, but can also be circulated in paper format on request

Conditions

  • Hereditary Hemorrhagic Telangiectasia (HHT)

Interventions

OTHER

Questionnaire

To capture large sufficiently large numbers of individuals for appropriate statistical power (see below), a web based questionnaire design was considered the most appropriate tool. SurveyMonkey was identified as the most suitable means to generate the questionnaire, facilitate confidential answers by the target populations, and for analysis of questionnaire data. The designed survey can also be presented in paper format, and used in our clinical service.

Sponsors & Collaborators

  • Imperial College London

    lead OTHER

Principal Investigators

  • Claire L Shovlin, PhD MB BChir FRCP · Imperial College London

Study Design

Allocation
NON_RANDOMIZED
Purpose
PREVENTION
Masking
NONE
Model
SINGLE_GROUP

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
Yes

Timeline & Regulatory

Start
2012-04-30
Primary Completion
2015-05-31
Completion
2015-05-31

Countries

  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT02464644 on ClinicalTrials.gov