International HIT-MED Registry (I-HIT-MED)
NCT02417324 · Status: RECRUITING · Type: OBSERVATIONAL · Enrollment: 500
Last updated 2025-12-04
Summary
The I-HIT-MED registry registers clinical of children and adults with medulloblastoma, ependymoma, pineal tumours, or choroid plexus tumours in Germany and other countries that fulfil national ethic requirements for participation in this registry. These tumours are rare diseases, and many patients are treated outside of clinical trials. The I-HIT-MED registry allows collection of data und biological material from those patients, and provides a basis for standard treatment recommendations and counselling. It aims to improve the international cooperation and the medical knowledge in these rare diseases. Within the I-HIT-MED registry, it is a goal to maintain and improve networks for quality assurance in national groups where they are already established, and to support the implementation in national groups, where there is no quality assurance network yet.
Conditions
- Childhood Brain Tumor
Sponsors & Collaborators
-
Universitätsklinikum Hamburg-Eppendorf
lead OTHER
Principal Investigators
-
Stefan Rutkowski, Prof. · Universitätsklinikum Hamburg-Eppendorf
Eligibility
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2015-01-31
- Primary Completion
- 2029-12-31
- Completion
- 2029-12-31
Countries
- Germany
Study Locations
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