Development and Assessment of The Polycystic Liver Disease Questionnaire (PLD-Q).
NCT02173080 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 594
Last updated 2024-09-19
Summary
This Pilot study will enable development \& assessment of a Polycystic Liver Disease-specific patient reported outcomes questionnaire (PLD-Q). Polycystic liver disease (PLD) is characterized by the formation of numerous cysts in the liver, and can lead to severe symptomatic hepatomegaly. It is common in patients with autosomal dominant polycystic liver disease (ADPLD) and autosomal dominant polycystic kidney disease (ADPKD).
Conditions
- Polycystic Liver Disease
Interventions
- OTHER
-
PLD-Q
polycystic liver disease questionnaire
Sponsors & Collaborators
- lead OTHER
Principal Investigators
-
Marie C Hogan · Mayo Clinic
Eligibility
- Min Age
- 18 Years
- Sex
- ALL
- Healthy Volunteers
- No
Timeline & Regulatory
- Start
- 2014-06-30
- Primary Completion
- 2024-03-11
- Completion
- 2024-03-11
Countries
- United States
Study Locations
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