Survey of Current Management of Orthopaedic Complications in CMT Patients

Summary

Charcot-Marie-Tooth (CMT) disease is the most common inherited peripheral neuropathy. Foot deformities are frequent complications in CMT patients and orthopaedic surgery is often required. As yet there are no systematic studies on the management of orthopaedic complications in CMT patients and the current approach varies between centres. This study is a survey with the aim of understanding the current surgical approach to orthopaedic complications in CMT.

The target population includes orthopaedic surgeons who perform surgical procedures for foot deformities in CMT patients attending centres participating in the Inherited Neuropathies Consortium (INC).

Conditions

• Charcot-Marie-Tooth Disease

Interventions

OTHER

Survey

Sponsors & Collaborators

• National Hospital for Neurology and Neurosurgery, London

  collaborator UNKNOWN

• University of Iowa

  collaborator OTHER

• Children's Hospital of Philadelphia

  collaborator OTHER

• University of Pennsylvania

  collaborator OTHER

• University of Rochester

  collaborator OTHER

• Dubowitz Neuromuscular Centre

  collaborator OTHER

• Sydney Children's Hospitals Network

  collaborator OTHER

• Carlo Besta Neurological Institute

  collaborator OTHER

• Johns Hopkins University

  collaborator OTHER

• Vanderbilt University

  collaborator OTHER

• University of Washington

  collaborator OTHER

• National Institutes of Health (NIH)

  collaborator NIH

• Stanford University

  collaborator OTHER

• Data Management and Coordinating Center (DMCC)

  collaborator OTHER

• Federal, State foundation and industry support: National Institute of Health (NIH), Muscular Dystrophy Association, Charcot Marie Tooth Association

  collaborator UNKNOWN

• University College London Hospitals

  lead OTHER

Principal Investigators

• Prof Mary Reilly · National Hospital for Neurology and Neurosurgery

Eligibility

Sex

ALL

Healthy Volunteers

No

Timeline & Regulatory

Start

2013-02-28

Primary Completion

2014-11-30

Completion

2014-11-30

Countries

• United Kingdom

Study Locations