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Paediatric End of Life Care Needs in Switzerland

NCT01983852 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 200

Last updated 2017-03-22

No results posted yet for this study

Summary

Background Children living with life-limiting conditions have always been part of the health care system. Although there have been dramatic improvements in medical care, hundreds of children continue to die annually. The field of paediatric palliative care (PPC) and end-of-life (EOL) care is based on the principle that an interdisciplinary team should care for patients and their families. However, evidence on how to provide optimal PPC and EOL care covering the needs of children and their families is scarce and lags substantially behind that in the adult world. Few is known on how EOL care - defined as the last four weeks of life in this study - is presently provided in the Swiss health setting. The presented study Paediatric End-of-LIfe CAre Needs in Switzerland \[PELICAN\]) covers paediatric EOL care and will contribute to a comprehensive understanding of EOL care in Switzerland by analysing retrospectively medical charts of children/young people between 0 - 18 years who died in the years 2010 and 2011 in Switzerland. A survey instrument will be developed and pilot tested to assess the perspectives of families who have experienced the loss of a child. After the development pilot testing and adaptation of the instrument a survey with parents who lost a child in the years 2010 and 2011 will take place. Furthermore, the experiences and needs of health professionals working in the field of pediatric EOL will be explored.

Conditions

  • Paediatric Palliative Care

Sponsors & Collaborators

  • University Children's Hospital, Zurich

    collaborator OTHER

  • University Children's Hospital Bern

    collaborator UNKNOWN

  • University Children's Hospital Basel

    collaborator OTHER

  • Centre Hospitalier Universitaire Vaudois

    collaborator OTHER

  • University Hospital, Geneva

    collaborator OTHER

  • University of Lausanne

    collaborator OTHER

  • Ospedale Regionale Bellinzona e Valli

    collaborator OTHER

  • University of Basel

    lead OTHER

Principal Investigators

  • Eva Cignacco, PD Phd · University of Basel

Eligibility

Max Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2012-06-30
Primary Completion
2015-06-30
Completion
2015-06-30

Countries

  • Switzerland

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01983852 on ClinicalTrials.gov