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The Quality of Life and Direct Financial Costs Associated With Home Ventilation of Children: A Prospective Study

NCT01863992 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 90

Last updated 2017-09-21

No results posted yet for this study

Summary

The investigators wish to learn about the quality of life (QOL) of children needing long term home ventilation and also that of their regular caregivers. In addition, the investigators will monitor the extra health-related expenses these families must meet. Data will be collected using two age-specific questionnaires of QOL plus a third one validated for assessing chronic health care costs. Questionnaires will be administered at an initial face to face meeting, supplemented by two telephone follow-up calls, to monitor medical expenses, one and two months later.

Conditions

  • Children Receiving Ventilation at Home for Chronic Illness or Disease

Sponsors & Collaborators

  • University of British Columbia

    lead OTHER

Principal Investigators

  • Mike Seear, MD · British Columbia's Children's Hospital

  • Mike Seear, MD · BCCH

Eligibility

Min Age
1 Year
Max Age
17 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2013-09-30
Primary Completion
2014-12-31
Completion
2015-02-28

Countries

  • Canada

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01863992 on ClinicalTrials.gov