Exercise Study of Function and Pathology for Women With X-linked Adrenoleukodystrophy
NCT01594853 · Status: COMPLETED · Phase: NA · Type: INTERVENTIONAL · Enrollment: 31
Last updated 2018-08-29
Summary
The purpose is to see how X-linked adrenoleukodystrophy (X-ALD) is associated with strength and sensation using MRI, in women with X-ALD. The investigators will also see whether exercise can improve these symptoms for women with X-ALD.
Conditions
- X-linked Adrenoleukodystrophy
Interventions
- BEHAVIORAL
-
exercise training
The exercise program uses a local Curves® gym to provide an individualized program of strength and cardiovascular training. The program is expected to be performed for 45 minutes 4-6 days per week.
Sponsors & Collaborators
-
European Leukodystrophy Association
collaborator OTHER -
Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
lead OTHER
Principal Investigators
-
Kathleen M Zackowski, Ph.D. · Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
Study Design
- Allocation
- NA
- Purpose
- TREATMENT
- Masking
- NONE
- Model
- SINGLE_GROUP
Eligibility
- Min Age
- 21 Years
- Max Age
- 70 Years
- Sex
- FEMALE
- Healthy Volunteers
- Yes
Timeline & Regulatory
- Start
- 2012-05-31
- Primary Completion
- 2014-10-31
- Completion
- 2014-10-31
Countries
- United States
Study Locations
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