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The Dystonia Coalition Natural History and Biospecimen Repository for Isolated Dystonias

NCT01373424 · Status: COMPLETED · Type: OBSERVATIONAL · Enrollment: 3265

Last updated 2020-10-26

No results posted yet for this study

Summary

Dystonia is a disorder characterized by excessive involuntary contraction of muscles with repetitive and patterned movements. The isolated dystonias are the most common type of dystonia and include Limb dystonias (like writer's cramp), Cervical dystonia (spasmodic torticollis), Laryngeal dystonias (like spasmodic dysphonia), and Craniofacial dystonias (like blepharospasm). The purpose of this study is to create resources to help learn more about the isolated dystonias, myoclonus dystonia, and dopa-responsive dystonia and to develop and validate various dystonia rating scales.

Conditions

  • Dystonia

Sponsors & Collaborators

  • National Institute of Neurological Disorders and Stroke (NINDS)

    collaborator NIH

  • Office of Rare Diseases (ORD)

    collaborator NIH

  • Allergan

    collaborator INDUSTRY

  • Dystonia Study Group

    collaborator OTHER

  • Emory University

    lead OTHER

Principal Investigators

  • H. A. Jinnah, MD, PhD · Emory University

Eligibility

Min Age
18 Years
Sex
ALL
Healthy Volunteers
No

Timeline & Regulatory

Start
2011-01-31
Primary Completion
2020-09-30
Completion
2020-09-30

Countries

  • United States
  • Australia
  • Canada
  • France
  • Germany
  • Italy
  • United Kingdom

Study Locations

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Read the full study record

This page highlights key information. For complete eligibility criteria, study locations, investigator contacts, and the full protocol, visit the original record on ClinicalTrials.gov.

View NCT01373424 on ClinicalTrials.gov